PRISMA Updates & Newsletters

At PRISMA, we work closely with the community by listening to their priorities and sharing research in clear and accessible ways. Through newsletters, educational resources, and community initiatives, we aim to support meaningful connections and ongoing collaboration.

Spring 2026 Newsletter

Featuring:

Stories from the Breckenridge family and their journey with 17q12 deletion

Gene Genie Chronicles: Understanding pleiotropism
Learn more about current PRISMA studies
WhatsYourThing? exhibit news

Read Newsletter

2024

In this edition, you can learn more about 22q11.2 deletion syndrome, meet Karen Kelm and her family as they share their journey with Fragile X syndrome, and explore updates on PRISMA’s transition from Providence to Edmonton, along with news from our research, clinical care, and community initiatives.

Read Newsletter

2022

In this edition, you can learn more about 15q13.3 deletion syndrome, explore updates from our implementation science initiatives, and meet Ms. G, who shares her family’s journey with the 15q13.3 deletion and her advocacy work supporting the “Unique and Special 15q13.3 Microdeletion” community.

Read Newsletter

2019

In this edition, you can learn more about 17q12 deletions and duplications, explore resources for the 17q12 community, celebrate achievements from members of the 17q12 Foundation, and discover current research initiatives and updates about the International 17q12 Family Meeting.

Read Newsletter